Showing posts with label writings. Show all posts
Showing posts with label writings. Show all posts

2012-06-27

A Pre-Evaluation Reflection

Well, tomorrow’s the big day.  The big show.  Our diagnosis day.  I’ve been waiting on this evaluation for just over 4 months, since it became obvious at PX’s initial developmental testing that I could no longer deny the A word.
It’s a bit ironic that I tried to shake off the idea of PX being somewhere on the spectrum, considering my entire pregnancy that was my biggest worry. 
At 20 weeks we went for genetic counseling as part of prep for a level II ultrasound.  Ugh, genetic counseling.  The phrase seemed so off-putting, like I‘d suddenly jumped ahead a millennia and was living in Gattica.   “Make my baby STRONG!  No defects, please.  I want a world class athlete with the brains to stomp Jobs and Gates into the ground.”  We were referred because of the other half’s congenital heart defect but the first question out of my mouth was “My half-brother is autistic, what’s my son’s chance?”
“Half?  On what side?  How old?”
“My dad’s son, he’s ten years younger.”
They both just smiled at the time and tried to assure me the probability was only raised a fraction of a percent, perhaps there was a 2% chance of PX being autistic.  Even with dad having aortic stenosis, our children’s risk factor was still under 5%. 
“Don’t worry, it’s all minimal.”
At the time I secretly wanted to jump up and scream “Then why THE FUCK did we have to drive AN HOUR and make me puke on the side of the FUCKING highway for this in-depth ultrasound if there’s not even a 5% chance of my baby having a heart defect that you might not EVEN FUCKING catch on an ultrasound?”  But I kept my mouth shut, because I am a worrier, I put no faith in any low-ball risk, and I wanted a cute picture.  Our other pictures were small and fuzzy.  I got a DVD here- score!
I didn’t mention my worries again, to anyone, my entire pregnancy.  Even when, at 34 weeks, my totally healthy pregnancy nose-dived into a small chaos.  I’d begun rapidly gaining weight while PX was not.  In one week, I gained nearly 10 pounds and PX’s weight was holding steady at an estimated 5lbs 8oz.  “Small for Gestational Age” was written on every conceivable form.  I was at my OB’s office or the maternity wing of the hospital nearly daily, as my blood pressure began to rise.  So at 38 weeks, enough was enough and labor was medically induced.
Twenty-seven hours later, narrowly avoiding an emergency c-section, out came my St. Patrick’s Day little boy. phoenix-1st month 001
Officially, he was just 2oz over being underweight, which caused about a 50/50 split of “he might hit his milestones a little later” and “he’ll be just fine!”  And he was just fine, or what seemed to be fine.  He hit all his milestones on time or early.  So all my worries just sort of fizzled away, and I got lost in my little ball of energy and my 2nd pregnancy.  He was, and still is, my little sidekick.
newest 158
father's day 133
So when did it happen? 
Did it JUST happen, or was it always there?  Hiding quietly under the surface, masquerading as random quirks?
I didn’t notice anything drastically different from other children until he turned 13 months; he had some texture aversions but I was always reassured that was normal.  Could it really just come out of thin air?  Was there any link between my third trimester problems, his growth reduction?  Will it matter if I ever know?
I should probably be packing to get ready for the big day tomorrow but my mind is a little all over the place.  I worry too much, and stress too often.  But I guess that’s parenthood.

2012-04-30

{Different Isn’t Wrong} to: I Wish I Didn’t Have Asperger’s, #AutismPositivity2012

I’ve been trying to write this post for a few days, but I keep getting overwhelmed.  And upset.  And royally pissed off (at society).  And go off on ranty tangents that totally take away from what I really am trying to get at.  So I’m just going to dive in.

You are not your Asperger’s.  You are not your autism or ADD/ADHD or bipolar or sexuality or weight or race or income level or car you drive.  You are you, which is more than just a word or symbol.  You are the beautiful unique snowflake, and this is more than okay: it is the gift of life.

Do not wish yourself away, because different isn’t wrong.  It is not bad or sad or deplorable or unrespectable.  Although sometimes it may feel the opposite, there is no cookie cutter mold of who to be.  The days of The Stepford Wives and “keeping up with the Jones’” are long gone.  There may be some people who try to hold on to this idea, uncomfortable with their own differences and in turn try to put others down, but do not listen to these few among the billions of people on the planet. 

Picasso was different.  So was Frida Kahlo, William Shakespeare, Lady Gaga, Adam Levine, Mozart, Albert Einstein, Dr. Seuss, Ke$ha, Jim Henson, among hundreds of others who have made history in all sorts of aspects of life.  And it was their differentness, their uniqueness, that made history.  Some even had Asperger’s or were suspected to be on the autism spectrum.  And they were/are amazing, far from boring, far from “normal” (whatever the heck that is), anything but ordinary.

Just like you.

Remember that, and hold that in you always. 

weird

2011-04-13

Toddler Haikus

I got this from one of the message boards I frequent, and decided to write my own.

Toss puffs all around
No food on my tray please mom!
Tastes best off the floor.

Want mama to play?
Let's play pass...oh forget it
You just run away.

Mom is wondering
About a toddler's food groups--
Bugs, puffs, dirt, ba-ba.

You're covered in poop,
Stop trying to scratch your butt!
Poop isn't a toy.

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